Story
Myself and Blair are taking part in Brain Tumour Research Jump for Hope (sky dive) on the 10th June 2023 in honour of my son Jay, Blair’s brother. Jay was diagnosed age 18 with a grade 3 astrocytoma in May 2020, although he had had a seizure in the January of that year the actual cause was not picked up until severe headaches in the May and a MRI revealed an aggressive tumour the size of an orange. 3 ops and relentless cycles of radiotherapy and chemo treatment followed, set backs and the news of new tumour growth Jay devastatingly died 18 months later age 20. Our hearts shattered our lives forever changed and sadly we know we are not alone in that. So we have decided this year to support Brain Tumour Research and the desperate need for funding they require and hope that some day others may have a better outcome and families wont have to live with the unimaginable reality we do.
Jay was the most selfless, wise, courageous, insightful young man, he touched all whom he met, he believed in only focusing on what he could affect and not what he couldn’t change. For those who dont know, Jay wrote a journal the last weeks of his life it has been a precious gift for not only us as a family but also his friends. His thoughts were for others and how we would cope after, his attitude to his life and death was totally humbling. This cruel disease he tried so hard to live with, to hold at bay as long as he could and we hoped with all our being he could defy the stats that weighed so heavy. To see your child, your sibling endure what he did and know the unbearable outcome that looms is every parents living nightmare. Sadly we arent anywhere near the break throughs, the research, the options that might have given him and others a fighting chance or help prolong lives and the quality of them. All we can do now is be voices in raising awareness and much needed vital funds to give those now and those of the future a better chance, a greater hope! We stand with all those who sadly have to walk this path.
If you wish to donate anything we are so grateful we know so many charities are in need so deepest thanks if you can spare something.
Brain tumours kill more children and adults under 40 than any other cancer and just 12% survive beyond five years. That fact is shocking and you may have to re read that to take it in! Treatments have hardly changed in decades. Brain tumour research historically only receives 1% of government funding. Change must come. These terrible statistics, along with devastating stories of loved ones affected by brain tumours, mean that it is important that we work together to #FundTheFight
By taking on this Jump for Hope, we will be doing that, Jay will be with us, he was and is our hero.
@The Jay Walk - one step at a time ♠️💚✨