Mega May Miles for M.E. - ME Research UK

Claire Carter is raising money for ME Research UK

Team: Mega May Miles for M.E.

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Team Run for M.E. 2022 ยท 15 May 2022

ME Research UK exists solely to fund high quality biomedical studies into the causes and treatment of ME/CFS. This illness affects approximately 250,000 people in the UK but is neither well understood nor, in many cases, properly recognised. We fund highly regarded, peer-reviewed research worldwide.

Story

Hello. We are a team of parents, friends and family members of some amazing young people living with ME/CFS (Myalgic Encephalomyelitis / Chronic Fatigue Syndrome).

As part of Walk for ME 2022, during the month of May, our team will be running, walking, cycling and swimming as many miles as we can! (Mega miles!) in a joint team effort to raise awareness and raise vital funds for research into ME/CFS - one of the most devastating, life changing, underfunded, misunderstood and mistreated health conditions of this century.

Here's what we're all doing:

๐ŸŒŸ Beccy, Rachel P - 10k (6.2m) run on May 15th 

๐ŸŒŸ Niki - 5k run each Sunday in May

๐ŸŒŸ Tray - Pilates fundraiser and a 5k walk on May 15th

๐ŸŒŸ Kira - 10 - 15k run on May 15th

๐ŸŒŸ Katy - 10k walk on May 15th

๐ŸŒŸ Leonie & Lesley - walk (miles TBC) on May 15th

๐ŸŒŸ Michelle, her daughters Amber (8) & Scarlet (10) - 5 mile walk target on May 14th, Scarlet has M.E. and will be pushed in her wheelchair

๐ŸŒŸ Flora & Chris - 10 mile walk on May 15th

๐ŸŒŸ Riss & Kev - a 5k run, tied together! on May 15th

๐ŸŒŸ Vicky - 2 miles walk per day 1-15th May (30 miles)

๐ŸŒŸ Sarah - 5k average run per day 1-15th May (75k/46.6 miles)

๐ŸŒŸ Emma - 5k run or walk per day during May (96.3 miles!)

๐ŸŒŸ Lisa - 15 miles total running 1-15th May

๐ŸŒŸ Katie, Katieโ€™s husband Jon, sons Alex & Sam, and friend Anya - 120 mile accumulator! 1-15th May

๐ŸŒŸ Claire - 40 miles total running in May, including a 15 mile run on May15th, and a sea swim

๐ŸŒŸ Jo - 100 miles total cycling and 5 miles swimming during May

๐ŸŒŸ Bridget - 50 miles in May, walking / running / cycling and a sea swim

๐ŸŒŸ Robyn - 5 miles swimming during May and a sea swim

๐ŸŒŸ Mel - 20k total swimming during May (12.4 miles)

๐ŸŒŸ Jo & Rich - 30k walking during May (18.6 miles)

๐ŸŒŸJay - 60 miles total walking during May

๐ŸŒŸ Dom - 200 miles total running & cycling in May

There are at least 250,000 people affected in the UK alone, with an estimated 15-30 million people with ME/CFS worldwide, and still not much any healthcare professional, doctor or specialist can do to help. It is a long-term condition and all that anyone suffering can do is 'manage it' - live within their limits which for most, makes even the most basic of daily tasks incredibly difficult. Until more is understood about the causes, there is no effective treatment, no prognosis, and no long-term help or support at all. That's why we rely on charities and each other, and biomedical research is so badly needed.

Any and all donations no matter how big or small are so massively appreciated, and would mean the world to us, Thank you so much for supporting us ๐Ÿ’™โค๏ธ xxxx

"....doctors do not treat us and science does not study us. How could a disease this common and this devastating have been forgotten by medicine?" Jennifer Brea

ME Research UK believes that only biomedical research can find the causes of ME/CFS, improve diagnosis and treatment, and, ultimately, arrive at a cure. Thatโ€™s why research is our focus. We've awarded 57 grants since 2000 and invested over ยฃ2.2million. But research is expensive and becoming more so every day. Thatโ€™s the challenge we face, and thatโ€™s why we need your help.

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