Story
Hello. We are a team of parents, friends and family members of some amazing young people living with ME/CFS (Myalgic Encephalomyelitis / Chronic Fatigue Syndrome).
As part of Walk for ME 2022, during the month of May, our team will be running, walking, cycling and swimming as many miles as we can! (Mega miles!) in a joint team effort to raise awareness and raise vital funds for research into ME/CFS - one of the most devastating, life changing, underfunded, misunderstood and mistreated health conditions of this century.
Here's what we're all doing:
🌟 Beccy, Rachel P - 10k (6.2m) run on May 15th
🌟 Niki - 5k run each Sunday in May
🌟 Tray - Pilates fundraiser and a 5k walk on May 15th
🌟 Kira - 10 - 15k run on May 15th
🌟 Katy - 10k walk on May 15th
🌟 Leonie & Lesley - walk (miles TBC) on May 15th
🌟 Michelle, her daughters Amber (8) & Scarlet (10) - 5 mile walk target on May 14th, Scarlet has M.E. and will be pushed in her wheelchair
🌟 Flora & Chris - 10 mile walk on May 15th
🌟 Riss & Kev - a 5k run, tied together! on May 15th
🌟 Vicky - 2 miles walk per day 1-15th May (30 miles)
🌟 Sarah - 5k average run per day 1-15th May (75k/46.6 miles)
🌟 Emma - 5k run or walk per day during May (96.3 miles!)
🌟 Lisa - 15 miles total running 1-15th May
🌟 Katie, Katie’s husband Jon, sons Alex & Sam, and friend Anya - 120 mile accumulator! 1-15th May
🌟 Claire - 40 miles total running in May, including a 15 mile run on May15th, and a sea swim
🌟 Jo - 100 miles total cycling and 5 miles swimming during May
🌟 Bridget - 50 miles in May, walking / running / cycling and a sea swim
🌟 Robyn - 5 miles swimming during May and a sea swim
🌟 Mel - 20k total swimming during May (12.4 miles)
🌟 Jo & Rich - 30k walking during May (18.6 miles)
🌟Jay - 60 miles total walking during May
🌟 Dom - 200 miles total running & cycling in May
There are at least 250,000 people affected in the UK alone, with an estimated 15-30 million people with ME/CFS worldwide, and still not much any healthcare professional, doctor or specialist can do to help. It is a long-term condition and all that anyone suffering can do is 'manage it' - live within their limits which for most, makes even the most basic of daily tasks incredibly difficult. Until more is understood about the causes, there is no effective treatment, no prognosis, and no long-term help or support at all. That's why we rely on charities and each other, and biomedical research is so badly needed.
Any and all donations no matter how big or small are so massively appreciated, and would mean the world to us, Thank you so much for supporting us 💙❤️ xxxx
"....doctors do not treat us and science does not study us. How could a disease this common and this devastating have been forgotten by medicine?" Jennifer Brea
ME Research UK believes that only biomedical research can find the causes of ME/CFS, improve diagnosis and treatment, and, ultimately, arrive at a cure. That’s why research is our focus. We've awarded 57 grants since 2000 and invested over £2.2million. But research is expensive and becoming more so every day. That’s the challenge we face, and that’s why we need your help.