Bob Wright, Josh Wright, Maria Roe, Doug Wylie and Tony Howell are doing Tough Mudder Midlands and need your support and here's why.........

Jacob Nicholas Wright was born on the 6/12/10. Jacob was the first child of Claire and Bob Wright who had so many dreams for their perfect little boy. Those dreams were shattered when at 8 months Jacob started having prolonged, frequent, horrible seizures that could not be controlled with medication. He started to lose all of his skills and his smile. At 14 months an MRI showed extensive brain damage and Jacob was diagnosed with Leigh's Disease, a Mitochondrial Disorder with no treatment and no cure. Heartbroken Bob and Claire prepared for the worst thing a human can face, the death of a child. 2 months later on the 20/04/12 Jacob died in his Mummy's arms with his Daddy holding his hand. It is said that a child is born who will develop Mitochondrial Disease by the age of 16 every 20 minutes – there is no real treatment, no cure and always life limiting. That is just not right and that is what The Lily Foundation want to change.

As a family Bob and Claire were supported by The Lily Foundation. This was both in terms of emotional support and introducing them to families like theirs (they even sent them to Center Parcs for a family holiday) and also through giving them the hope that one day through funding research and awareness The Lily would help to find a cure. One day a child would not have to go through what Jacob did, that one day a parent would not have to go through what they did. This is incredibly important to Bob and Claire – they want to change the future in their little boy’s memory.

So on the 30/5/15 a group of fearless Team Jacum members (Team Jacum is Jacob’s fundraising group) will take on Tough Mudder – they will run, climb, swim through ice baths, get electrocuted, go in a chamber of tear gas, jump through fire and get very muddy all in Jacob’s memory to raise funds for The Lily Foundation to find that cure. Please give what you can – help them make a difference.