Kerry Askin
Team Dylan take on the London, Derby AND Robin Hood Half Marathons!
Fundraising for PASIC - Cancer support for children and young people
Story
Dylan first fell poorly on Christmas Day 2015 and was rushed to A&E after experiencing a lung collapse. Spending 2 weeks in hospital he was only discharged home for 4 days before suffering another lung collapse and spending another 3 weeks in hospital. At this point we were faced with scans and perplexed doctors giving us a bleak outlook.
Once healed and discharged home he lasted 10 days before having a respiratory arrest at playgroup on February 10th, requiring rescue breathes and an ambulance. Suffering a double lung collapse this took Dylan to the brink. However on that day we got his diagnosis of Pulmonary Langerhans Cell Histiocytosis and began his first round of Chemotherapy.
He then spent the next 3 months in hospital between intensive care and the oncology ward. During this time Dylan suffered an infection and had a seizure in March 18th causing him to need intubating again. This infection developed into PCP pneumonia and he fell gravely ill!
On Good Friday he was christened and on Easter Saturday he had deteriorated so badly that the decision was made to start active withdrawal which is the process of stopping treatment before turning off life support. However, as the medicines were being stopped Dylan started to fight back and he started improving on the afternoon of Easter Sunday.
In May 2016, Dylan finally came home and apart from the odd scare did, really well for the rest of his treatment. Sadly he did spend the next Christmas in hospital again with a virus but otherwise the rest of treatment was pretty uneventful, thankfully! On August 8th 2017 Dylan rang the end of treatment bell.
Fast forward 2 years when Dylan had a lung transplant discharge appointment and everything seemed great, until a lesion was found in his spine. On November 13th 2019 Dylan recommenced treatment for LCH causing him to stop football and swimming. And so began another year of chemotherapy, and throughout a pandemic no less! Dylan had to shield for months to stay safe whilst the doctors were unsure of how the virus affected oncology children, luckily they discovered he was safe to stop shielding by the summer and we got a few days out such at Twycross Zoo thanks to Pasic charity. Dylan celebrated finishing treatment in November 2020 by ringing the bell at home with family. He relapsed AGAIN in January 2022.
Throughout his entire time since diagnosis PASIC has supported us financially, with parties for Christmas & Easter, sibling days and days out as a family. They helped us spend much needed time away from the dreary grind of this awful disease!
Once healed and discharged home he lasted 10 days before having a respiratory arrest at playgroup on February 10th, requiring rescue breathes and an ambulance. Suffering a double lung collapse this took Dylan to the brink. However on that day we got his diagnosis of Pulmonary Langerhans Cell Histiocytosis and began his first round of Chemotherapy.
He then spent the next 3 months in hospital between intensive care and the oncology ward. During this time Dylan suffered an infection and had a seizure in March 18th causing him to need intubating again. This infection developed into PCP pneumonia and he fell gravely ill!
On Good Friday he was christened and on Easter Saturday he had deteriorated so badly that the decision was made to start active withdrawal which is the process of stopping treatment before turning off life support. However, as the medicines were being stopped Dylan started to fight back and he started improving on the afternoon of Easter Sunday.
In May 2016, Dylan finally came home and apart from the odd scare did, really well for the rest of his treatment. Sadly he did spend the next Christmas in hospital again with a virus but otherwise the rest of treatment was pretty uneventful, thankfully! On August 8th 2017 Dylan rang the end of treatment bell.
Fast forward 2 years when Dylan had a lung transplant discharge appointment and everything seemed great, until a lesion was found in his spine. On November 13th 2019 Dylan recommenced treatment for LCH causing him to stop football and swimming. And so began another year of chemotherapy, and throughout a pandemic no less! Dylan had to shield for months to stay safe whilst the doctors were unsure of how the virus affected oncology children, luckily they discovered he was safe to stop shielding by the summer and we got a few days out such at Twycross Zoo thanks to Pasic charity. Dylan celebrated finishing treatment in November 2020 by ringing the bell at home with family. He relapsed AGAIN in January 2022.
Throughout his entire time since diagnosis PASIC has supported us financially, with parties for Christmas & Easter, sibling days and days out as a family. They helped us spend much needed time away from the dreary grind of this awful disease!