Story
On 2nd May this year Samantha Webb-Jones, a beautiful, brave, inspirational lady and loving daughter, girlfriend and friend very sadly lost her battle to Cystic Fibrosis. Sam was helping me organise this event and was very excited about seeing daft old Annie jump out of a plane. The words below were written by Sam in support of this event.
“I love life and whilst most 22 year olds are out partying and enjoying the freedom of young adult life, I can only dream of doing those things as I am in the last stages of Cystic Fibrosis, which means I am dependant on oxygen 24 hours a day, I use a wheelchair to get around and I need a double lung transplant, without one I will die.
I spend most of my time in hospital as I require constant intravenous antibiotics, vigorous physiotherapy sessions to clear my lungs from mucus, exercise to keep my muscles from wasting, night time feeds, oral antibiotics, vitamins, inhalers, nebulised antibiotics and care. When not in hospital I spend a lot of my time in my room as some days I don’t have the energy to do more, even washing my hair can be hard work.
Cystic Fibrosis, it is the UK's most common life-threatening inherited disease which affects the internal organs, especially the lungs and digestive system, by clogging them with thick sticky mucus. This makes it hard to breathe and digest food.
3 young adults die each week from CF, my older sister, Stacey lost her life to CF in 2002 at the age of 18.
.
It makes me incredibly sad to think I might not be here but with your help you can help raise money to help find a cure as each week 5 babies are born with CF and with new improvements in treatments these babies will live long lives and won‘t have to experience what I and many other young adults have / are experiencing now, and offer them hope.
So please sponsor Annie and the rest of the team at Connaught’s on there tandem sky dive, you really will be making a huge difference to so many young lives.”