Tara Parry
Tara's 10,000ft Tandem Skydive for CF Trust!!
Fundraising for Cystic Fibrosis Trust
Story
I've decided to do a Tandum Skydive in May 2013 to raise some money for charity... I will be jumping out of a plane at 10,000ft whilst hoping the parachute opens!!! I've chosen to do it in aid of Cystic Fibrosis as during my time at university I have learnt a lot regarding the disease. I've seen the effect it has on health and day to day living, so hope this helps raise awareness for those people :)
A little bit about CF: it's a chronic multisystem disease whereby the central problems are associated with the respiratory system but also effect other organs. As there is no curative treatment I hope in raising some dollar it will hopefully help towards this or be used to pay for the interventions to keep them in good health for as long as possible!
Every donation is much appreciated! Thank you very much xxx
In people with CF the lungs make thicker sputum (mucus) than normal, which can trap bacteria in the small airways and lead to infection. Symptoms that typically develop include persistent cough, wheezing, shortness of breath and breathing difficulties and repeated chest infections.
Thickened mucus secretions block the normal flow of digestive juices from the pancreas, which means food can not be digested or absorbed properly, in particular fatty foods and fat-soluble vitamins (vitamins A, D, E and K). This can cause malnutrition leading to poor growth and poor weight gain, bloated abdomen and tummy aches, constipation and prolonged diarrhoea.
Other symptoms can include sinus infections, and nasal polyps. Some adults with CF may also get CF-related diabetes, arthritis, osteoporosis and liver problems.
Symptoms usually first develop within the first year of life, but in a minority of cases may not appear until later in childhood or beyond. The severity of symptoms can vary and not all people with CF will have every symptom.
Life expectancy is likely to be different for people of different ages; and this is before taking into account the fact that cf can also affect people differently. The median predicted survival for someone with CF currently stands at 41 years old.
For those who are very ill with CF and with very poor lung function, daily life can be a struggle as basic tasks can leave them breathless. Some patients use a wheelchair to get around, and use oxygen to help them breathe.
Cystic fibrosis affects everyone differently, but for many it involves a rigorous daily treatment regime including physiotherapy, oral, nebulised and occasionally intravenous antibiotics, and taking enzyme tablets with food. Some people with CF will have a feeding tube overnight.
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