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CF Trust is a charity very close to my heart - as many of you will know my cousins awesome daughters Lily and Evie both have CF. I've seen first hand the toll it takes on their lives - I've visited Evie when she's been hospitalised for weeks at a time for a course of IV antibiotics, I've seen my cousin struggling with a huge box of meds for just a weekend away, when they were younger I provided entertainment for them while they were having their daily physio sessions. Anything that can support people with CF, or better still do the science to improve treatment and/or prevention is so so appreciated by those with CF and their families.
Cystic fibrosis (CF) is a life-limiting genetic condition affecting more than 10,000 people across the UK. It affects the lungs and digestive system and can cause chronic infections and reduced lung function. Currently, half of those with CF will not live past age 41.The Cystic Fibrosis Trust is fighting for a brighter future for people with CF and their families by funding cutting-edge research, driving up standards of care and supporting people with the condition and their loved ones every step of the way.
Because of the risk of cross-infection, people with CF are advised not to meet up in person. Which makes this choir all the more impressive http://www.bbc.co.uk/news/av/disability-42358852/the-choir-that-can-never-sing-together