Duchenne muscular dystrophy (DMD) is a progressive muscle-wasting disease. It is the most common and severe form of muscular dystrophy. Diagnosed in childhood, usually between the ages of 3 to 6, it mainly affects boys. Started by families affected by the disease, Duchenne UK is the leading DMD charity in the UK: connecting the best researchers with industry, the NHS and families to advance and accelerate every stage of drug development. 

On or around the 7th September (weather permitting) I will swim as much of the 24 mile length of Loch Lomond as I can for my godson Felix who was diagnosed with Duchenne Muscular Dystrophy in 2014. I have been training for many months in an attempt to put these big feet, hands and limbs to good use and raise both awareness and funds for Duchenne UK, the charity which works tirelessly to develop treatments and a cure for this disease. Every single pound raised will be used to fund research and drug development for Duchenne UK.

Felix and two other children are currently in phase 1 of a global clinical trial for an experimental gene therapy designed to slow down the progression of the disease. The fact that Felix can take part in the UK is made possible by Duchenne UK, and trials are the only way we can find the solutions we need. Please help us to continue to progress towards a different future for all patients and families affected by this disease. By donating as generously as you can.

Thank you so so much, I will do my very best no matter what to just keep swimming...for Felix...and for all affected by Duchenne.

Susie

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