Story
We are going to be feeling like superheroes jumping out of a plane but sometimes, real superheroes live in the hearts of small children fighting big battles.
Noah is a special 7 year old boy who has touched our hearts. He suffers from a life limiting genetic disorder called Duchenne Muscular Dystrophy. (DMD) Noah is a happy and chatty boy that lives with daily pain and medical appointments but rarely complains. He is unable to physically keep up with his peers as he has progressive muscle degeneration and weakness. Lauren has watched Noah grow up and seeing first hand how it affects him and his family, has prompted her to raise money for this cause to help find a cure. Susanna has also seen how disability can affect family life and agreed to join Team Noah
Muscle weakness can begin as early as age 3, first affecting the muscles of the hips, pelvic area, thighs and shoulders, and later the skeletal (voluntary) muscles in the arms, legs and trunk. The calves often are enlarged. By the early teens, the heart and respiratory muscles also are affected and most don't make it past their teen years.
Muscular Dystrophy UK is the charity for 70,000 people living with muscle-wasting conditions. They are making a difference today, providing vital information and support to help people live as independently as possible. They are making a difference for tomorrow, accelerating progress in research and driving the campaign for access to emerging treatments.
Please help us to raise as much money as we possibly can.
Thank you so much in advance from us both,
The Salsa Skydivers xx