Susan Graney

Sue's page - Love for Leon

Fundraising for Muscular Dystrophy UK
£788
raised of £1,000 target
Donations cannot currently be made to this page
Event: Oxford Town and Gown 10k, on 15 May 2016
Muscular Dystrophy UK

Verified by JustGiving

RCN 205395 (England and Wales) - SC039445 (Scotland)
We fund research into muscle-wasting to improve the lives of everyone affected.

Story

Although not much of a runner, I decided to run this 10K to raise funds and awareness of Muscular Dystrophy as my lovely little 5 year-old nephew Leon  has Duchenne Muscular Dystrophy (DMD) a condition for which there is no cure.

Muscular Dystrophy UK is an excellent charity raising funds to support those with muscle-wasting conditions such as DMD and financing research to find treatments to stem the devastating effects of Muscular Dystrophy.

The date of the event is 15 May 2016 and if you could spare a pound or two for this very worthwhile cause, it would be much appreciated! Leon and all his family have moved to the US so he can participate in the Eteplirsin drugs trial - a treatment which is showing great promise in slowing the impact of Duchenne.  Money is really needed to fund further research into this heart-breaking condition. Thank you all so much.


Heartfelt thanks to all who have sponsored me. It is such a worthwhile cause and having recently discovered that I too am a carrier of the faulty Duchenne gene I know how lucky my boys are not to have inherited this devastating condition.  Leon is the first to have inherited the condition in our family and the money raised for Muscular Dystrophy UK will fund future research to help and perhaps one day fine a cure for this horrible condition.  Thank you all once again.

Share this story

Help Susan Graney

Sharing this page with your friends could help raise up to 3x more in donations

You can also help by sharing this link on

About the charity

Muscular Dystrophy UK

Verified by JustGiving

RCN 205395 (England and Wales) - SC039445 (Scotland)
Muscular Dystrophy UK is the charity bringing individuals, families and professionals together to beat muscle-wasting conditions.

Donation summary

Total raised
£787.19
+ £142.50 Gift Aid
Online donations
£787.19
Offline donations
£0.00

* Charities pay a small fee for our service. Find out how much it is and what we do for it.