Kerry Spink

Oscar and Seb - Superhero Step Challenge

Fundraising for Muscular Dystrophy UK
£3,360
raised of £2,000 target
Oscar & Seb’s Superhero Step Challenge , 16 March 2022
Oscar and Seb: Fighting FSHD
Campaign by Muscular Dystrophy UK (RCN 205395 (England and Wales) - SC039445 (Scotland))
Oscar And Seb: Fighting FSHD is a Family Fund set up in support for Oscar and Sebastian Spink who both have Facioscaphulohumeral muscular dystrophy (FSHD), in order to raise funds to help further research into this condition.

Story

Oscar and Seb are 11yo twins with FSH muscular dystrophy - a progressive , incurable condition that affects all their muscles and makes it hard to walk, lift their arms or do other everyday activities. . 

The boys have been obsessed with superheroes since they were tiny and LOVE all things Marvel , especially the Avengers and Spider-Man  ( you could say they love it 3000 - if you know, you know!) 

They’ve set themselves a huge challenge of climbing the height of the Stark tower from the movies ( we’re calling it Spink tower  ;)  - that’s a massive 2000 steps! They wanted to do a physical challenge whilst they still can, as they already need wheelchairs for getting any distance and climbing stairs is exhausting for them. 

This is such a tough physical challenge for them both, that they’ll be doing it over the course of a month in “Avengers April” ! It’s a real superhero step challenge. 

Any support you can give them would be brilliant and all funds raised will go towards supporting others with muscular dystrophy and research into treatment for FSH. 

Thank you so much for your generosity - you’re our superhero! 

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About the campaign

Oscar And Seb: Fighting FSHD is a Family Fund set up in support for Oscar and Sebastian Spink who both have Facioscaphulohumeral muscular dystrophy (FSHD), in order to raise funds to help further research into this condition.

About the charity

Muscular Dystrophy UK

Verified by JustGiving

RCN 205395 (England and Wales) - SC039445 (Scotland)
Muscular Dystrophy UK is the charity bringing individuals, families and professionals together to beat muscle-wasting conditions.

Donation summary

Total raised
£3,359.73
+ £621.25 Gift Aid
Online donations
£3,359.73
Offline donations
£0.00

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