Thanks for taking the time to visit my JustGiving page.

Sunday 13th July - It was great to finally get to race day. It was really hot and most of the water around the route  ended up over me rather than in me!!  Thank you to those that donated and those who are still  to do so .. hesitate no longer!! I was so lucky to have the support of my family and friends.... on the run and proud of them for their own efforts.  We all got round in respectable times - some more respectable than others. But that wasn't important. We ran it for our mum/grandma who fought so hard and with such grace and good humour against Motor Neurone Disease.  The page remains open for donations a bit longer. The MNDA are so incredibly grateful for your support. 

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My Mum was diagnosed with Progressive Bulbar Palsy, a Motor Neurone Disease from which there is no cure or treatment.  the prognosis for patients is between 1 and 3 years.   Chewing, swallowing, and talking are affected in people suffering from PBP.   She was diagnosed early last year (2013),  it had taken many months to get the diagnosis and by then she could no longer speak, her swallowing was difficult, and she shortly stopped eating and was fed through a tube.  She was so very brave, keeping her sense of humour and her wicked giggle throughout although we knew she was afraid.  We felt helpless as there is no specific treatment and often it was with trial and error that we would find ways to help her through the worst times.  She died in November 2013.  We miss her.  It is said that a GP will see only 1 or 2 cases of MND in a whole career, it is no wonder diagnosis seems to take so long and the information given to support the patient and family so vague.   We did not know what course her illness would take until we had contact with our local MND Association.  It really is a terrible disease.  

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