My name is Keegan Mojo Blayney and I’m 5 years old. I live in Noosa, which is in Queensland, Australia.

Handsome I know and just by looking at me you wouldn’t think there was anything wrong however, I have Cystic Fibrosis……..

Cystic Fibrosis is a life threatening, genetic condition that predominantly affects my lungs, blocking the airways with clinging, suffocating mucus. CF also obstructs the ducts of my pancreas and it affects my liver, sweat glands, and reproductive organs.

I’m still too young to understand the massive impact this has on my life. But I’m only too aware there are lots of things I have to do every day that my big Brother and friends don’t have to do.

My daily treatments consist of nebulizer and chest percussion; which takes about 45 minutes. Mum does this twice a day when I have a cold to try and help loosen the mucus that builds up in my lungs.  I have to take digestive enzymes (up to 15 a day) every time I eat to help my pancreas absorb the nutrients in my food and I need vitamin supplements.

My diet is very high in fat, protein and salt (you should see the look some of the other parents give my Mum and Dad with the amount of salt and butter they add to my food!!)

At the moment, the life expectancy for a person with Cystic Fibrosis is 37 years of age, which is not nearly enough time for me to do everything I want to do…..

Dad says “money buys science and science saves lives” so with your help and kind donation, the Doctors will be able to do more important research and hopefully find a cure for Cystic Fibrosis.

Thanks for supporting Stu. Good luck in the Marathon.

Keegan

Thanks for supporting us in this years Dublin Marathon on 31st October 2011.  All donations gratefully received for the Cystic Fibrosis Trust.

Thank you.

Stuart