Steven Lightfoot

Steven's marathon for Cure INAD UK

Fundraising for Cure INAD UK
£1,426
raised of £1,000 target
Donations cannot currently be made to this page
Event: Rob Burrow Leeds Marathon 2023, on 14 May 2023
Cure INAD UK

Verified by JustGiving

RCN 1196205
We fund medical research to help save lives of children with INAD

Story

Thanks for taking the time to visit my JustGiving page. I'm running the new Leeds marathon on 14 May.

Please donate to help cure INAD, the terrible life limiting disease that my daughter Zoe has. Children with Infantile Neuroaxonal Dystrophy have a life expectancy of 5 - 10 years. There are gene therapy trials for INAD planned that could stop this terrible disease, as they have for other similar conditions. Please donate to help cure INAD. Zoe's story is here: https://www.cureinaduk.org/childrens-stories/#zoe 

More information is available at https://www.cureinaduk.org/

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About the charity

Cure INAD UK

Verified by JustGiving

RCN 1196205
Infantile Neuro Axonal Dystrophy (INAD) is a rare inherited disorder. Children have a life expectancy of 5-10 years. Cure INAD UK is raising money to help fund research to find a cure, and medication to improve prognosis.

Donation summary

Total raised
£1,426.00
+ £271.50 Gift Aid
Online donations
£1,426.00
Offline donations
£0.00

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