Sebastian was born in June 2014 and at 9 weeks old  was diagnosed with a mitochondrial condition called Leigh's Sydrome. The life expectancy of a baby with this condition is 2-3 years.  

There is no cure for this condition.  

Sebastian is now 7 years old and is meeting milestones we once thought were impossible. He can sit unaided, crawl around, pull himself into the standing position and even take a few steps.

Even though Sebastian continues to do well, the reality of the situation is never far from our minds and with his complex needs there is always something going on to remind us that he is fighting hard every day to battle this disease.   

Team Sebastian have joined together to help raise money for The Lily Foundation. This charity is so important in helping families whose lives have been affected by mitochondria, like us. They not only offer support through every tough step, they help fund equipment to make every day life easier and they are fighting to find a cure. The Lily Foundation give us hope.