Guillain-Barré syndrome (GBS) is a rare autoimmune condition affecting the peripheral nervous system. Often triggered by a viral or bacterial infection such as flu or food poisoning, it causes the nerves in the arms and legs to become inflamed and stop working, usually leading to temporary paralysis which may last from a few days to many months. An estimated 1,300 people (1-2 people per 100,000) are affected by GBS annually in the UK. About 80% will make a good recovery, but between 5-10% of people will not survive and 10-15% may experience long term residual effects ranging from limited mobility or dexterity, to life-long dependency on a wheelchair. A further 650 people (1-2 per 200,000) are diagnosed each year with CIDP (Chronic Inflammatory Demyelinating Polyneuropathy); a similar but longer-lasting variant of the syndrome. It is possible to recover from CIDP, but many are affected for the rest of their lives and will require ongoing treatment with immunoglobulin or steroids. 

In January 2016 Steve went from being a fit healthy marathon runner to someone who was unable to stand or walk. He was numb from his toes to his chest and the illness affected most of his major organs. He was diagnosed with GBS but following a relapse, many painful invasive tests the diagnosis was changed to CIDP. Although he can now walk and run (short distances) and may appear very well he suffers daily with very painful neuropathic feet and hands and chronic fatigue, there are no two days the same. The Gain charity has helped us with advice and support when we really needed it. 

Throughout the month of May Steve and I will be undertaking the GAIN momentum challenge. Between us we will try and walk/run 100 miles. We would really appreciate any help you can offer, every penny counts.