Stephanie Sims

Stephanie 's page

Fundraising for Motor Neurone Disease Association
£595
raised of £500 target
Donations cannot currently be made to this page
Event: Great North Run 2022, on 11 September 2022
Join #TeamMND as we take on the Great North Run 2022

Story

This year I’m running the GNR for the MND association.

This charity is extremely close to my heart as a family friend has recently been diagnosed with Motor Neurone disease. I have known Martin and his husband Graeme for a lot years and Graeme even gave me my first job at 16. They are the most amazing, kind and full of life people and have a perfect family with their little boy and I want to help in any way I can to help find a cure ❤️

Martin was diagnosed with MND in October 2021, neither he nor his partner Graeme saw it coming.

Up until January 2021, Martin and Graeme led very active and vibrant lives. They started their journey together in 2005, married in 2008, built a successful business and when the time was right, they adopted their son; their life was perfect!

However, in early 2021 Martin’s speech began to slur and after many visits to doctors a year of testing for various conditions and misdiagnoses, they were eventually given the heart-breaking news that he had MND. Martin’s variation of MND is ALS (Amyotrophic Lateral Sclerosis). After some investigation Martins MND was found to be carried genetically from his Uncle who had died from the illness some years before.

Since his diagnosis this perfect loving family unit have been on an emotional roller coaster as they navigate their way through all the information, endless consultations that all provide insight as to what is ahead.

Martin has maintained the most incredible positive attitude throughout and is determined to do whatever he can to fight this illness. The progression of Martins MND has been given a 3-5 year term but there are many cases where this time scale had doubled so by keeping as fit and healthy as he can Martin is giving himself his best chance.

We want you all to follow Martin’s page so that we can share his story and raise much needed funds for Motor Neuron Disease Association. Hopefully it might also help others diagnosed with MND find their inner determination and positivity as the navigate their own MND roller-coaster.

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About the campaign

Join #TeamMND as we take on the Great North Run 2022

About the charity

The MND Association focuses on improving access to care, research and campaigning for those living with or affected by MND in England, Wales and Northern Ireland. If you or a loved one need practical or emotional support, call our Connect Helpline on 0808 802 6262, Mon to Fri between 9am and 4pm.

Donation summary

Total raised
£595.00
+ £71.25 Gift Aid
Online donations
£595.00
Offline donations
£0.00

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