Stella Preece

I'm getting active for Action Duchenne

Fundraising for Action Duchenne

£90
raised of £100 target
Donations cannot currently be made to this page
790km for Samson, 9 June 2021
Get motivated to get up, out and about after lock-down. Encourage each-other, your children, young people and adults living with Duchenne and your friends to express themselves through different events and activities.

Story

In school, I support a little guy, called Samson, who is 9 and lives with Duchenne muscular dystrophy. 

What is Duchenne?

Duchenne muscular dystrophy is a rare, muscle wasting condition which occurs mainly in boys and is often diagnosed around the age of 2 to 4.  

The lack of dystrophin makes muscles more susceptible to damage and leads to muscle wasting over time. People living with Duchenne muscular dystrophy experience progressive muscle weakness and typically need to use a powered wheelchair from their early teens.

The heart and breathing muscles are eventually affected and most will require a ventilator in their twenties; life expectancy is around 30 years but has improved with palliative care developments.

There is no cure.

The background 

This past year, Duchenne families have faced the most difficult situation, to stay safe at home shielding, risking irreparable muscle damage. Damage which many children, young people and adults living with Duchenne have experienced during lock- down. 

Why Action Duchenne?

I am walking 790 km raising money for Action Duchenne, an amazing charity which supports everyone living with Duchenne in the United Kingdom. The work they do is life-changing, funding research, supporting families and campaigning for equality for disability. 

Please help me support this wonderful charity by donating, and ticking the GiftAid box. 

What your donation could mean

  • £20 Could pay for a newly diagnosed family to receive an initial support telephone call and vital information pack.
  • £50 Could fund one full hour of research.
  • £100 Could contribute to bringing a Duchenne science education event to our families across the UK

THANK YOU x Stella

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About the campaign

Get motivated to get up, out and about after lock-down. Encourage each-other, your children, young people and adults living with Duchenne and your friends to express themselves through different events and activities.

About the charity

Action Duchenne

Verified by JustGiving

RCN 1101971
We have a very clear vision: a world where people's lives are no longer limited by Duchenne muscular dystrophy.

Donation summary

Total raised
£90.00
+ £36.25 Gift Aid
Online donations
£90.00
Offline donations
£0.00

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