Thanks for taking the time to visit my JustGiving page. The reason for my taking part in the skydive is to do with Jacques story (Eva's father), which is shown below in red.

 

You will probably know that our daughter was born in August 2010 with Pierre Robin Sequence (PRS). When she was born the midwife took our baby away swiftly without even a word to us and pushed the emergency button. The room’s atmosphere changed from happy & excitement to sheer panic. The door flew open and half the hospital staff stormed in to try and get our baby breathing. After quite some time our precious little angel was present to us with various tubes clouding her beautiful face. That is the first time that we heard of PRS. The specialist cleft and palate nurse explained to us what PRS was and what this will hold for us in the future. This affected her breathing severely and had to be fed via a tube through her nose. It was a devastating time in our lives which should have been a time of utter joy. I never left sight that we were blessed with a beautiful baby that had some special needs and that we were entrusted with her wellbeing. We spent a month in hospital with her to try and improve her breathing and feeding as she need to gain weight prior to us being allowed to be discharged and take her home. She could not be bottle fed due to her condition. After the medical staff was happy with the progress that Eva made we were allowed to go home. Our lives changed considerably. Eva was booked in for her operation to install a peg through her stomach lining prior to her mouth reconstruction surgery. I will never forget that day as long as live seeing our precious baby being put to sleep for the operation. The waiting around seemed like an eternity to be called to see her in the recovering room. Once all the operations have been completed to date, our little one is closely monitored by various specialists. These specialists include; Geneticists, speech and language therapists, dieticians, hearing specialists, heart specialists, and the list go on. I take my hat off to Eva’s mom as she runs around and keeps a tight ship with all her appointments and spending as much time with her to encourage Eva to try eating, drinking and speaking. With all the support from the medical teams, family and friends our little peanut is striving, however, still pegfed, making steady progress. I have decided to do a skydive to help raise awareness of PRS and try raising funds for the Cleft Lip and Palate Association, which helped us during this very difficult time, to allow them to continue the good work and helping families in our situation. Without the support and guidance of them and the specialists we would have found this even tougher. So, I please ask if you would sponsor me for my charity skydiving event and in turn you could help change the lives of so many people which are in our position. I have manage to put a small team together that will join me on my quest of raising awareness/funds of PRS. Please visit CLAPA’s website for a full explanation of what PRS is and how it affects the lives of so many people.

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