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Hi everyone, this is the first time I have spoken publicly about this. Our Mazza was taken into hospital in June 2022 after suffering stroke like symptoms. The GP and then Hospital thought it was a stroke initially too and she was in hospital for two weeks. In the end, she was diagnosed with Functional Neurological Disorder (FND). She has lost the ability to open her mouth, is unable to speak properly/eat properly and drinks only through a straw. This is due to the FND and orofacial/oromandibular dystonia as part of this. There are various other symptoms, some of which are memory issues, chronic fatigue/pain, painful spasms and severe migraines amongst others. Other key issues that people suffer with are as follows: Walking difficulties, dystonia/paralysis of different parts of the body and seizures. There are many others.

I am incredibly proud of Maz and the way that she has continued to keep trying even though her life has been completely changed. She is an inspiration not only to myself but her family and friends as she continues to take each day like an 'FND Warrior.' Unfortunately, there are very few specialists in this field and the treatment pathways are severely lacking and awareness and funding are greatly needed. It says it all, that until she was diagnosed, we hadn't heard of the condition either and yet it is the second most common reason that people see neurologists after migraines.

Saturday 25th March is FND Awareness Day in the UK. I am climbing Mount Snowdon with an amazing group of people to raise awareness and Funds for the charity FND Action. Mount Snowdon means a lot to Maz as someone that has become really important in her life initiated the thought of the place and another special lady, Imelda said she was would be happy to lead a group on the adventure for her there. Thank you so much to you both of you for all you have done for her. She will be a huge part of organising this with me and will hopefully be able to take part in some way on the day. Here is the link to the website for the charity, FND Action.https://www.fndaction.org.uk/

Lastly, she asked me to thank those of you that have shown your care and love for her in what has been a very difficult time. You know who you are and it will never be forgotten.❤️ '

I appreciate it is an extremely challenging time but if you are able, please could you sponsor us to do this challenge by clicking the just giving link below and remember... 'FND- the most common condition you've never heard of.'

Thank you, Stace.x

NB/ 2ND date May 6th 2023. :) Now completed.