As many of you know my husband Martyn tested positive for the Huntington’s in 2009 . He became symptomatic in 2017 aged 51   This means a slow decline in mental , physical and cognitive capabilities. The  life expectancy from onset of symptoms is around 15 years .

This is a hereditary disease which he inherited from his mum .  Children of those who carry the gene have a 50/50 risk of inheriting the illness . This means Georgina and James are at risk 

We had no idea when we met and had children this disease was in the family . Martyns grandmother who they now believe may have had HD died before anyone in the family had even heard of HD.

Sadly Martyns Uncles , one of his sisters  , a niece , and  two nephews have all tested positive .

I’m not built for running ( or speed )! I like my food and drink ( a lot )!!  However I want to do all I can to raise awareness of this dreadful disease and raise as much money as I can to support the great work this charity does . Please give what you can . 

Thank you xx 

The Huntington's Disease Association supports anyone who is affected by Huntington's disease across England and Wales. We pursue the best possible care; provide training & advice to families and professionals; raise awareness, and promote research towards better treatment and care.