I'm part of Team Fred for 2024. Please help me reach my target of £1,200 for Children's Hospice South West. In July, I'll be cycling over 200 miles from Somerset to Cornwall in aid of CHSW to help raise vital funds to support and care for children and young people living with life-limiting conditions, and their families.
My nephew Fred passed away at two months old, At birth, his brain was starved of oxygen, causing a significant brain injury (Hypoxic Ischemic Encephalopathy Or HIE) and severe epilepsy. Children's Hospice Southwest - specifically, Little Bridge House provide hospice care for children with life-limiting conditions and their whole family. They took care of Fred during his end of life treatment and made a horrific situation as good as it could possibly be. Our family are forever grateful for the memories they made as a family during his last days.
From day one, Fred baffled all health professionals by exceeding their expectations. It was unlikely for him to survive further than his first day but he was a fighter, surprising people from this day to his last. Eventually, the damage to his brain proved too much for Fred and the medications that he was on were not enough to keep him free from seizures.
Because Fred battled so hard, we have had time to meet extraordinary and generous people. This money will allow families to access their services for a little longer. We hope that Fred will continue to impact those around him in a positive way.
So if Fred and his story have touched you, please give a little, to help another family in our position - and make their tricky journey a little easier.