Like my boys, Harry is a very cheeky chap who will try and get away with anything using his smile. He's into everything; playing football after school, swimming and taking great delight in winding up his brother.

In 2013, Harry's family were told he has Duchenne Muscular Dystrophy - a neuromuscular condition that causes progressive muscle weakness. They now know by his 10th birthday it is likely he will be in a wheel chair and his upper body will then begin to shut down due to this rare and painful condition. As a muscular degenerative disease, eventually his heart and lungs will fail, almost certainly before he is 30. The most difficult part - there is no cure, it will happen and it is 100% fatal.

There is a large amount of research currently taking place in the UK and abroad but as yet the only treatment is a steroid program to help manage the disease. I am running this marathon to raise awareness and funds that just might give other boys, like Harry, a future.