I have set myself a challenge to walk at least 10,000 steps a day throughout April to raise much needed funds for the Smith-Magenis Syndrome Foundation. 

Grace turns 14yrs old on the 13th April, She was diagnosed with Smith-Magenis Syndrome when she was just 10 days old, a diagnosis that flipped our world upside down. 14yrs later she is the most amazing little girl who has the biggest smile, her strength and determination is an inspiration. 

The Smith-Magenis Syndrome Foundation is a charity that is very close to my heart, they support families like ours,  Smith-Magenis Syndrome is a life changing diagnosis, the support and guidance trustees and staff at the SMS foundation give to families is invaluable. 

Help us to ensure every person with Smith-Magenis Syndrome shall have a fulfilling life within a supportive and understanding community.

The Smith-Magenis Syndrome (SMS) Foundation UK is at the heart of our community. We will be the first point of contact for those seeking information and support. Nobody should ever feel isolated or alone. We value every person affected by this genetic disorder and shall empower them to reach their full potential as respected members of society.

Connecting Families – Raising Awareness – Building Futures