Please help raise money in memory of our beautiful baby boy Teddy, at 6 weeks old he was diagnosed with a rare condition called Spinal Muscular Atrophy, or SMA,it is a rare inherited neuromuscular condition. It may affect crawling and walking ability, arm, hand, head and neck movement, breathing and swallowing. The night he got diagnosed with the life limiting condition I found the SMA website, the stories of other parents brought me comfort and helped me feel not so alone in the whole process, I got in contact with SMA Support UK within a couple of days we had a member of staff at the hospital they were willing to help us in anyway possible. Giving us adapted car seats to help Teddy get around (due to being so floppy he could no longer sit in a normal car seat),Sensory toy boxes with so many wonderful things he could play with all adapted to his condition, giving us all the knowledge we would need to know about Teddys condition, they have been truly amazing and still support me with my continuing journey. They are such a valued charity within the SMA community and we want them to continue with the fantastic work they do, they help raise awareness, and most importantly support families like us. Any donation big or small will be greatly appreciated.
Thankyou all so much xx