£3,897
raised of £3,000 target
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London Marathon 2019 · 28 April 2019 ·

DEBRA London Marathon Team 2019
Campaign by DEBRA (RCN 1084958)
Welcome to our London Marathon team page!

Story

There will blood, sweat and a lot of tears going into this Marathon, as many of you already know - my son Dylan Allan Talbot was born with Generalised Severe Junctional EB a genetic condition which causes the skin to blister when touched due to a lack of proteins in the skin. 

When he was 2 weeks old - we found out Dylan was terminally ill, my wife and I had to make some difficult decisions about end of life care as well as managing his deteriorating condition.  This involved the loss of skin, managing open wounds and pain medication.

Debra helped us through this difficult time, and we promised Dylan before he passed that we would do what we can to #fightEB. 

Dylan I'm doing this for you son - hope you're proud of Daddy x  



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About the campaign

Welcome to our London Marathon team page!

About the charity

DEBRA

Verified by JustGiving

RCN 1084958
DEBRA is the national charity that supports individuals and families affected by Epidermolysis Bullosa (EB) – a painful genetic skin blistering condition which, in the worst cases, can be fatal. We fund pioneering research and provide care and support to individuals and families living with EB.

Donation summary

Total
£3,896.76
+ £715.25 Gift Aid
Online
£3,595.00
Offline
£301.76

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