DEBRA is the national charity supporting those directly affected by, and working with, Epidermolysis Bullosa (EB) – a potentially fatal skin condition that causes constant pain due to unstoppable internal and external blistering. DEBRA provides lifelong care and support to the entire EB community. 

The pandemic has been extremely damaging to our DEBRA fundraising activities heavily reliant on our network of high street stores throughout the UK.

2021 is about renewing and energising our DEBRA fundraising activities ensuring families receive our support and that the research programs continue at pace.

Our golf society is vital to the overall fundraising activities of DEBRA, my JustGiving page will be essential in providing the funds for new and innovative research. I look forward to seeing you all back on the fairways.  

Together we #FightEB and together we will beat EB.

Please click on the links below to find out more and see DEBRA stories.

An animated view of EB - Life of Layton: https://youtu.be/bwuzaZPR9P0

What is EB to me: https://youtu.be/1iLO6ygbteQ

Mason's story: https://www.youtube.com/watch?v=4b76zfbSnuE