Hi everyone,  my Dad, myself and my brothers lost our mum last year just after Christmas with MSA. Our mum was a wonderful person who donated all her time helping others and her family.

Being an ex nurse she knew this condition would eventually take her life however always remained defiant to the end. We saw her gradual decline over a year going from normal mobility, in and out of hospital to being in a wheelchair.. This was hard to witness for us all and with covid was made even more difficult as we had to keep our distance due to risk of infection.

One of my main regrets was not giving her a final hug before she went due to covid risks so my hug to you mum, from myself, Richard, Andrew and your loving husband John is to raise some money to help others going through this horrible condition.

Below is a general description of the condition that affects only 3000 people in the uk currently.

Please donate what you can do others can be helped through this difficult disease.

Multiple system atrophy (MSA) is a rare neurological disease with no known cause or cure. Affected families not only struggle with the symptoms of this degenerative condition (deterioration in walking, speech, balance and continence), but also faces the financial implications that life with MSA brings. MSA Trust has a small grants scheme used to help people in these circumstances. These grants provide a varied range of support, from help towards purchasing mobility equipment, to respite care and counselling. However, each Christmas, they find that the demand for support rises significantly, as their members understandably wish to travel to see their families, communicate via a Lightwriter, or make their homes more accessible and comfortable in the winter months. However, the Trust can only afford to provide a very limited number of grants each year. I am raising funds so more families affected by MSA can be helped through these grants. Please support me.