My brother Robin suffers from a very rare genetic muscle wasting disorder called myotonic dystrophy, which is a type of muscular dystrophy. It is incredibly debilitating and has progressively got worse over the last 20 years. 

Along with having to live with this, he is also recovering from non-hodgkinson lymphoma cancer for the second time in less than 4 years. 

His muscle wasting disorder means Robin now can’t hold a cup of coffee securely, stand for too long, do his belt up, or get out of the bath. He is only 51 years old. Robin and his wife Jenny, who is his full time carer, are amazing people and so positive, despite what they are going through. They never complain or ask for help.

Very little is still known about Myotonic Dystrophy, so I want to raise awareness and help provide some vital funding for deeper research.

I will be dressed as a Phonebox for the London Marathon 2023!!

Having your support is the most important thing, but if you feel you can donate a small amount, that would be so kind. Thank you, Sid