My Name is Owen. I have three rare syndromes - Loeys-Dietz Syndrome, CDK13 Genetic Disorder and I carry the mutation for ANKRD11 KBG Syndrome. I have been a full time wheelchair user since 2017. I am leading a team of disabled people from all over the country, who are taking part in the Superhero Series at home challenge from 23rd July to 20th August. I am then finishing the Challenge by completing the Superhero Series Triathlon at Dorney lake, Windsor on 20th August 2022.

I aim to complete 30K by doing laps of my living room (136 laps = 1K ), and also out in my local community, by self propelling in my wheelchair, for the Virtual Challenge and end with the event in Dorney.

I'm fundraising towards Whizz-Kidz' vital services for young wheelchair users. Please sponsor me and help transform young people's lives.All young people face challenges, but for a young wheelchair user society can be that bit more challenging to navigate. The right wheelchair is more than just a set of wheels; it can be the key to unlocking a young person’s potential.Whizz-Kidz’ range of services give young disabled people the chance to lead a fun and active childhood, while gaining independence and growing in confidence.