Our son Jack has congenital nystagmus, which means he's had it since birth.  However, he had so many medical issues to address that we didn't realise until he was seven months old.  We wondered why his eyes constantly moved from side to side and one day thinking about how everyone says babies focus on your face (which Jack didn't), we realised we should ask the doctor about it.  Nystagmus is a visual impairment that affects ability to focus, judge speed and depth and recognise faces.

Looking for information about what having nystagmus means for Jack and how we can support him, I found the Nystagmus Network.  The charity provides support for adults with nystagmus and families of children with nystagmus.  It's made such a positive difference and the resources they provide for explaining nystagmus to other children and teachers will be invaluable when Jack goes to school this September.  They also raise awareness and support, as there's currently no cure for nystagmus.

Rich, Jack and I are doing the 5km Welly Walk for Raindrops on Nystagmus Awareness Day - 20 June.  Would you like to join us?  I can picture us wearing our wellies on a lovely sunny day.

If you feel able to, it would be wonderful if you could sponsor our Welly Walk by selecting 'give now'.  The money goes straight to the Nystagmus Network (via Just Giving) and all donations are gratefully received.

Whether you are able or unable to donate, I would be really grateful if you could help to raise awareness by telling one other person about nystagmus today.

Thank you!