Shelley Babbage

Shelley's page

Fundraising for The Society For Mucopolysaccharide Diseases (The MPS Society)
£2,655
raised of £1,700 target
Donations cannot currently be made to this page
Event: London Marathon 2022, on 2 October 2022
In memory of William Sainsbury
The MPS Society has a great team of runners for the TCS London Marathon 2022 which takes place on Sunday 2nd October. Our runners will be raising money for our members affected by MPS, Fabry and related lysosomal diseases.

Story

In October I will be taking part in the London Marathon. I am running for the MPS society. The MPS Society provides support across the UK to families affected by rare, life-limiting genetic conditions. These genetic conditions cause a range of complex difficulties and they provide vital support to the whole family for as long as they need it. 

In 2019 I started working with a fantastic boy called William. William had a life limiting condition. He had MPS 1, Hurlers disease. When William arrived in class SR he stole the hearts of everyone that was lucky enough to work with him. He was cheeky, funny, stubborn and very determined. He knew what he wanted. William was so brave. This truly amazing boy was often in pain and struggled with daily tasks but he never gave up he gave everything his all. He always gave 100% effort. He made me laugh everyday I saw him and gave the most amazing cuddle's. Sadly William passed away in October 2021 and I miss him every day. So I am running the marathon in his memory. This will be a challenge for me but William always gave everything his all so now it’s my turn. Please if you can sponsor me I would really appreciate it and I know the MPS Society would be truly grateful.

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About the campaign

The MPS Society has a great team of runners for the TCS London Marathon 2022 which takes place on Sunday 2nd October. Our runners will be raising money for our members affected by MPS, Fabry and related lysosomal diseases.

About the charity

The Society For Mucopolysaccharide Diseases (The MPS Society)

Verified by JustGiving

RCN 1143472 and Scotland SC041012
The MPS Society provides professional support to children, adults and families affected by MPS, Fabry and related Lysosomal Storage Diseases and funds research into treatment and therapies. These diseases are rare, genetic, life-limiting conditions.

Donation summary

Total raised
£2,655.00
+ £360.00 Gift Aid
Online donations
£2,655.00
Offline donations
£0.00

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