Shane, Maria & Kevin

Breege Hoyne is raising money for Joseph's Goal
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Dublin Marathon 2019 · 27 October 2019 ·

Joseph's Goal

Verified by JustGiving

RCN 1151548

Story

We’re raising much needed funds that go towards ground breaking research to find a cure for NKH (nonketotic hyperglycinemia), a rare but terminal metabolic disorder. 

Kai (Mikaere) is a beautiful two year old boy who was diagnosed with NKH shortly after he was born. We know Kai and his family through our sweet Ruairí. He is close to all our hearts. 

So, if you can, please donate to TeamMikaere & Joseph’s Goal, you can help beautiful Kai have a future and many other children too, because rare still means so many lives, and every life is one too many.

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About the charity

Joseph's Goal

Verified by JustGiving

RCN 1151548
Joseph Michael Kendrick is 15 years old and has Non-Ketotic Hyperglycinemia, a rare genetic disorder that affects one in 60,000 new-borns. The condition is so serious that less than 500 people in the world are living with it. Joseph’s Goal has been set up to raise funds and awareness into NKH.

Donation summary

Total
£2,294.28
+ £262.50 Gift Aid
Online
£2,294.28
Offline
£0.00

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