shane holliday

For the love of Lou

Fundraising for Hunter New England Local Health District
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Brain Not On Fire, 22 February 2023
PICU
Campaign by Hunter New England Local Health District (RCN ABN: 63 598 010 203)
The PICU provides state-of-the-art intensive care services to critically ill children and young people across Northern NSW. The Paediatric Intensive Care Unit is a dedicated eight-bed unit, staffed by specially trained paediatric intensivist care doc

Story

In early february of 2020 our then 2 year old daughter Louise Nola Holliday collapsed in her mothers arms due to a focal seizure with no prior instance. She was diagnosed Anti-MNDA receptor encephalitis. An extremely rare auto-immune condition with no known cause and little 

We were told the worst and had low expectations of recovery
in the early days. She was diagnosed in februrary and we left hospital at the end of march after a long stay in PICU at the John Hunter hospital.

 When getting home she couldn’t walk, talk or eat solid foods which
she was doing perfectly prior to the condition taking hold. It has now been 3 years since leaving hospital and she is on no medications with little lingering major health issues. 


The PICU provides state-of-the-art intensive care services to critically ill children and young people across Northern NSW. The Paediatric Intensive Care Unit is a dedicated eight-bed unit, staffed by specially trained paediatric intensivist care doctors, nursing and allied health staff.

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About the campaign

The PICU provides state-of-the-art intensive care services to critically ill children and young people across Northern NSW. The Paediatric Intensive Care Unit is a dedicated eight-bed unit, staffed by specially trained paediatric intensivist care doc

About the charity

HNEkidshealth represents the Children, Young People and Families Directorate of Hunter New England Local Health District which integrates a range of health care services designed to meet the ever-changing health needs of babies, children, young people and their families.

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