The first of its kind in Australia, Rare Find Foundation exists to improve the lives of people living with Tay-Sachs and Sandhoff diseases through support, information, and advocacy, and to support research of these conditions.

Anna Pak Poy & Marc Coupar are inspirational parents that have channelled their heart ache in to not only supporting other families, but also raising awareness about this devastating disease and forging ahead with much needed research.

Love L x