My step-nephew Oliver was diagnosed with Duchenne muscular dystrophy in 2016/17 and since then his friends and family have been fighting to raise money and awareness of this condition, with support from Action Duchenne from day one. 

Duchenne muscular dystrophy is a rare genetic condition caused by mutations in the dystrophin gene, which prevent production of a vital muscle protein called dystrophin.

The lack of dystrophin makes muscles more susceptible to damage and leads to muscle wasting over time. People living with Duchenne muscular dystrophy experience progressive muscle weakness and typically need to use a powered wheelchair from their early teens.

There is no cure. But Action Duchenne are working tirelessly to support those affected by DMD, and also to  support clinical trials for DMD treatments. 

I am taking on the 10k Gelt Gladiator obstacle and mud race to help raise money and awareness for this condition - no doubt getting soaked and muddy in the process!