This is my story, Dainton was a baby where it's unknown what he actually died from. I am a parent who has been robbed of their son. I didnt get the choice for a 2nd opinion, they wanted me make a decision & was rushed to turn his life support machine off.

22/08/2013 I went into sudden labour at 33 weeks pregnant, I went straight to Royal Albert Hospital (Wigan) where I was put on monitors, within minutes I was rushed down to theatre for a emergency c-section because Dainton-Lee's heart rate was dropping rapidly.

I had nurses and doctors preping me for theatre whilst wheeling me down, all I remember is going threw the theatre doors crying, then I was asleep. Dainton-Lee was born at 09.47am weighing 3Ib 11oz, he was struggling to breathe. 

So Doctor's moved him quickly to neonatal (NICU) where he was put on a machine to help with his breathing. When I saw him a few hours later in his incubator so fragile, with wires and tubes everywhere my heart shattered. 

Day 2 (am) was woken by the Doctor because Dainton-Lee had to be transfered. St Mary's Transportation Team came and took my baby to Royal Bolton Hospital in a ambulance with blue's and sirens going.

Royal Bolton Hospital is a Level Care 3 and that's what Dainton-Lee needed the highest level of care. I followed in a 2nd ambulance. 

My brave little fighter continued to battle on in NICU (Neonatal Intensive Care Unit) with numerous amount of lines going threw his belly button and machines to help with his breathing. 

This went on and as the days passed Dainton-Lee was slowly deterioting, which was absolutely heartbreaking to see.

After 10 days of him fighting for his life, numerous amount of tests, heart scans, gases & blood tests. I agreeded to turn the machines off as their was nothing more the Doctor's could do to save Dainton-Lee's life and fairest thing to do is let him fly with the angels. 

As the nurses and doctors starting taking his tubes out and decreasing all his medication, I was finally allowed to give my Son his first cuddle, but at same time was saying goodbye. By this point I fell to pieces.

Within 5 mins on the 02/09/2013 at 01:00 Dainton-Lee gained his angel wings and I felt like my heart had been ripped out.

I spent a few hours with Dainton-Lee cuddling him, talking to him, telling him things we would of done, then got him dressed for this 1st time. 

Feeling left empty inside, I then put Dainton-Lee in his cold cot and went back to my room on NICU and cried like I never have before.

Following morning after no sleep and still everything feeling surreal, I went back to see my baby to say my final goodbye's. 

I sat their for hours and hours in silence just cuddling my boy, before giving him a final kiss goodbye. I tucked him back in his cold cot with his teddy and blanket. As I left the room I fell to my knees crying my eyes out.

When the post-partum came back I found out that Dainton-Lee died from TAPVD (Total Anomalous Pulmonary Venous Drainage) a very rare heart condition, Severe Pulmonary High Pertention, Severe Lung Disease, Surfactant Deficiency and Sepsis which was all the way threw his tiny body/organs. 

As any parent would feel I was left mortified and completely heartbroken, by far this has been the most traumatic time of my life.

#Sandsuk #fundraising #TeamSands #daintonlee

Thanks for taking the time to visit my JustGiving page.