Mother and Daughter team will be taking part in a half marathon on October 9th 2016 to raise money for EDS UK which was set up in 1987 to support, advise and inform those living with Ehlers-Danlos Syndrome..

''Ehlers-Danlos syndrome (EDS) is a genetic disorder in which the structure of connective tissue is abnormal due to a gene mutation. This results in abnormally fragile and hyper-extensible tissues throughout the body which can lead to a range of multi-systemic symptoms; the effect on the body is widespread and not limited to one body system.

There are different types of the condition and a vast spectrum of symptoms are experienced by our community. Although many lead full and
active lives, EDS can lead to physical disability and some rarer types can be life limiting. There is a lack of knowledge about EDS in the medical profession and it is therefore often misdiagnosed or overlooked.''

Sam son of Rachel and brother of Sarah has been diagnosed with PoTs and EDS so severely, his life is compromised everyday.

Beth- daughter of Rachel and sister of Sarah, has been diagnosed with EDS and suffers chronically from the condition. Beth is currently in a wheelchair in chronic pain.

Youngest sister, Jane is also currently in the process of being diagnosed with EDS.

Help is incredibly limited due to the lack of knowledge and understanding of the condition.

The aim is to raise awareness of EDS whilst raising money to go toward EDS UK. Anything you can give will be most appreciated and help us reach our shared target of £250

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