Our son, James Shaw (Little Jimmy) died at just one month old at Great Ormond Street Hospital. Three weeks later they saved the life of his twin sister Isabel. So far, we have raised enough money for GOSH to buy two new very specialist ventilators in  Jimmy's name to honour his memory. Help us buy them even more life-saving equipment.

On Sunday 3rd December a team of Santas and Elves will be dashing, jogging, scooting, strolling, push-chairing 5km or 10km in Santa suits in memory of Little Jimmy in the Great Ormond Street Hospital Santa Dash on Clapham Common, London. Please sponsor our team here. 

Taking part are: Santa Pete, Santa Emily, Elf Izzy and Elf Lexy Shaw; Santa Mungo Wenban-Smith; Santa James, Santa Marieke, Elf Hanna and Elf Emma Montgomery; Santa Stratos, Elf George and Elf Vanessa Lazanakis; Santa John and Santa Jo Papastylianou-Skoulikas; Santa Tessa and Elf Geraint Jones; Santa Charlotte and Elf Clementine Sacher; Santa Laura and Elf Finn McGill; and Santa Rebecca Scott.

Why not join our team? Go to http://www.gosh.org/get-involved/fundraising-events/london-santa-dash , click on 'Join A Team' and enter 'Little Jimmy Brighter Future Fund'

You can follow our grand total (combining all our contributors and events pages) on this link: https://www.justgiving.com/remember/407805/James-Shaw

Little Jimmy's story:

On 21st September 2016 our baby boy James William Shaw was born. Three minutes later his twin sister Isabel followed, two beautiful new siblings for our 18 month-old daughter Alexa. Jimmy really was exceptionally handsome with a full head of auburn hair with a highlight streak of blond on his crown, which had seemingly already undergone a designer haircut/styling, so that the nurses at Queen Charlotte’s Hospital nicknamed him ‘One Direction’. Both twins were thriving at home and we were excitedly beginning to look to the future together as a family of five.

At just five and a half weeks old our little Jimmy became suddenly, unexpectedly and desperately unwell with presumed sepsis (an overwhelming infection) and a complicating blood clot to his bowel. Despite the heroic efforts of the staff of our local hospital, the Children's Acute Transfer Service (CATS) ambulance team and ultimately Great Ormond Street Hospital Intensive Care Unit, Jimmy could not be saved. He died in our arms on the evening of 31st October, covered in the kisses of his mummy and daddy who told him how loved he was. It is beyond words how traumatised we were left by those 2 days of seeing him so desperately unwell and how bereft Jimmy’s death left us, our hearts were truly broken.

Three weeks after Jimmy died, and just two days after we had buried him, his twin sister Izzy too suddenly became unwell of an unrelated condition (a diaphragmatic hernia with malrotation), we were just seemingly that unlucky. Within 24 hours Izzy was undergoing emergency, life-or-death surgery at Great Ormond Street. We genuinely believed we were going to lose a second child that day, it was nothing short of torture. Thankfully Izzy’s operation was successful and she recovered.

Jimmy's mummy Emily is a hospital doctor, and can hand-on-heart honestly say that in 12 years experience as a clinician has never seen such a unanimous, continuous and determined effort and bloody-minded resolve to save a life as with Jimmy. The medical staff gave blood, sweat and tears to save our little boy, he received the best possible care in the world, by the most humane doctors and nurses we have ever met and for that we are beholden to them. Beyond the world-class care both he and Izzy received at GOSH, our family received unbounded care and kindness, practical support (such as neighbouring accommodation) and pastoral support that continues to this day (including bereavement counselling). GOSH gave us our very best hope of saving Jimmy, saved the life of Izzy and took extremely delicate and humane care of us parents in the process.

Very soon after these experiences we became resolved on trying to repay some of our perceived incalculable debt to GOSH, nurture something positive out of such a tragic loss and continue to strive to keep Jimmy’s memory alive. We are pulling together an army of impossibly loyal family and friends to join us in fundraising a hugely ambitious amount of money for GOSH, specifically in Jimmy’s name, as his legacy.

With £160,000 raised in total so far, we have already paid for five new
 ventilators for GOSH in Jimmy’s name (we needed £103,800 in all
for these) and are excited waiting to hear what life-support equipment we will buy them next. The ventilators will be used by the Children’s Acute Transfer Service (CATS) team bringing sick newborns, babies and children to GOSH, while the other will be used within GOSH. For the first time, these will enable very sick children to be transferred whilst receiving the most intensive ventilation ('oscillation') available. Dr Ramnarayan, lead GOSH consultant for CATS (who also happened to have been the doctor who stabilised Jimmy sufficiently to transfer him to GOSH) believes that this may make all the difference for 25-30 of the sickest children every year. Help us buy GOSH buy even more life-saving equipment!

Please join us in fundraising and/or give what you can.

Love and gratitude from Pete, Emily, Lexy and Izzy Shaw xx

You can donate directly here.

Please if you wish to send us a cheque, make it out to Great Ormond Street Hospital Children’s Charity or GOSHCC. If you are donating through your work payroll, please use charity number 1160024

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