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Thanks for taking the time to visit our JustGiving page.
Every penny we raise will be going into research and clinical trials to help save the lives of children with Sanfilippo. This disease has no treatment or cure and families with Sanfilippo children have to watch their child die very slowly in front of them. Two of our precious children Sophie (9) and Tom Shields (7) both have this illness and their days are numbered. Hopefully in the not too distant future Sanfilippo children will have a treatment to limit the affects of the disease and one day a cure. We long for that day.
So please dig deep and donate. Huge thanks
@ride4life2013