In August 2015, the live's of my family were torn apart with the news that my little boy of 22 months had this illness awaiting him.  Nobody can know the pain hearing this news creates unless you have been there.  Presently, there is no cure for the illness.  It is 100% fatal with life expectancy varying, but not much greater than in the 20's.  A cure for the illness lies in stem cell research which requires funding.  I and my friends and family are now endeavouring to raise funds to help pay for this research in the hope that it can be discovered in time to help my little boy.  This fund raising is not for him, but for every child diagnosed with this illness and the hope of finding a cure.  

This isn't just a begging bowl being passed about.  My team and I will be taking on some physical challenges along the way and arranging events to raise funds.  I hope you will join us in helping to beat this terrible illness.

Thanks for taking the time to visit my JustGiving page.

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