What is Duchenne? Duchenne muscular dystrophy is a rare, muscle wasting condition which occurs mainly in boys and is often diagnosed around the age of 2 to 4. The lack of dystrophin makes muscles more susceptible to damage and leads to muscle wasting over time. People living with Duchenne muscular dystrophy experience progressive muscle weakness and typically need to use a powered wheelchair from their early teens. The heart and breathing muscles are eventually affected and most will require a ventilator in their twenties; life expectancy is around 30 years but has improved with palliative care developments. There is no cure. Why Action Duchenne? I am raising money for Action Duchenne, an amazing charity which supports everyone living with Duchenne in the United Kingdom. The work they do is life-changing, funding research, supporting families and campaigning for equality for disability. Please donate to help Action Duchenne continue their vital work.