TEAM SOPHIE - BRITISH 10K LONDON RUN - 11TH JULY 2010

Sophie was born with Hurler Syndrome, the most severe form of mucopolysaccharidosis type 1 (MPS 1).  The condition is degenerative and she was diagnosed just before her 1st birthday. She died at the age of 7, 3 years ago. When Sophie was 3 she took part in a clinical trial to assess the effectiveness of a new treatment for her condition. We had to travel to the Children's Hospital in Manchester every week for a year until she was able to access the treatment in Exeter. We knew from the outset that the treatment could not cure Sophie but we hoped it would ameliorate some of the symptoms she would experience as her condition degenerated.

A lot of research is being carried out into how to cure MPS 1 (as well as all the other MPS conditions). I think it is possible that there will be a complete cure for Sophie's condition during my lifetime or certainly within the lifetimes of Sophie's brothers. The MPS Society supports this research by donating money raised for it to different research projects. Please support the MPS Society in its research projects for MPS 1 by sponsoring us to do the London 10K run.

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