Thanks for taking the time to visit my JustGiving page.

I am making an attempt at the Great North Run for the first time this year!

No surprises that I have chosen to run for a skin related charity and have chosen DebRA.

DebRA is the national charity working on behalf of people affected by Epidermolysis Bullosa (EB)- a rare incurable genetic condition which causes the skin to blister and shear at the slightest friction or even spontaneously. In its most severe form it is fatal in infancy and can cause fatal skin cancer in young adults. In its mildest form it can cause lifelong disability and pain.

DebRA receives no government funding and relies on the generosity of the public to carry out its vital work, improving lives and giving hope. 5000 people in the have EB and about 500 000 worldwide

For more info and to view a short video clip showing the reality of living with EB please visit http://www.debra.org.uk/.

PLEASE give generously and thank you for your support.

This is Hollie's Story

Hollie was born on 12th March 2004 with Dystrophic Epidermolysis Bullosa.

Like any other little girl, Hollie loves to dance, play and have fun. But if Hollie bumps herself or her clothes rub, her skin blisters and comes away. When it occurs in her mouth or throat she struggles to eat or drink until the pain dies down.

Every morning, Hollie's dressings need to be removed, her blisters lanced and fresh bandages applied. This has to be repeated in the evening, before bed. This is an extremely painful process. To try and reduce Hollie's distress, her mum dyes her bandages a variety of colours to co-ordinate with her daughter's outfits.

Without DebRA's support, Hollie could not live her life to the full.

What your donation could provide...

£2.50   "Scratch Mitts" to prevent a baby born with EB from tearing their own skin

£5    a set of easy grip chunky pens to help children hold a pen when their fingers are fused together from repeated scarring

£10   a tube of "no sting medical adhesive remover" to help ease the pain of dressing changes

£25    1 hour of research to bring us closer to finding an effective treatment for EB

£50    accommodation for one parent of a child in hospital

£150   a pressure relief mattress to relieve the discomfort of sleeping.

£500   a home air conditioning unit. Imagine how uncomfortable it is in warm weather when your body is tightly wrapped in bandages.

£1000  support for a child with EB including equipment e.g. special bed linen, adapted buggies, food blenders, specialist footwear and much more.

£3000   a special cot for an EB child at home

£10,000 support for our 3 mobile homes for a year- giving a great many children with EB and their families a much needed holiday break.

£50,000 specialist nursing care in for 1 year

£100,000 funding for one or our skin cancer research programmes for 6 months

Every donation received, large or small is important and makes a real difference to the charity’s work.

 

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.

So please dig deep and donate now.