joanne Buchanan

Running for Rebekah

Fundraising for Dravet Syndrome UK
£797
raised
Donations cannot currently be made to this page
running for Rebekah , 2 September 2014
Dravet Syndrome UK

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We fund medical research & raise awareness to help families living with DravetSyndrome

Story

Rebekahs friends have decided to run 3 miles to raise money for Dravet Syndrome UK.

Dravet Syndrome, which Rebekah suffers from, is a life limiting epileptic condition. Children with Dravet Syndrome suffer from many types of seizures on a daily basis, many life threatening and requiring emergency intervention. They also have problems with eating, sleeping, walking - in short it effects every aspect of life.
Dravet Syndrome remains a disease with a very poor prognosis and there is no cure. We really want to help change this by fundraising for further studies and medical research

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About the charity

Dravet Syndrome UK

Verified by JustGiving

RCN 1128289
Dravet Syndrome UK is dedicated to improving the lives of children and adults living with Dravet Syndrome through medical research, education and awareness and appropriate support.

Donation summary

Total raised
£796.40
+ £143.75 Gift Aid
Online donations
£726.40
Offline donations
£70.00

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