Dravet Syndrome, which Rebekah suffers from, is a life limiting epileptic condition. Children with Dravet Syndrome suffer from many types of seizures on a daily basis, many life threatening and requiring emergency intervention. They also have problems with eating, sleeping, walking - in short it effects every aspect of life.

Dravet Syndrome remains a disease with a very poor prognosis and there is no cure. We really want to help change this by fundraising for further studies and medical research