Running for Frankie

H-abc Foundation UK is raising money for H-abc Foundation UK

Participants: Louisa, Tracey, Amy, Skye, Tara and Kelly

Team: Cure h-abc

£100
raised of £1,000 target
Donations cannot currently be made to this page

Running to help Frankie · 28 March 2020 ·

H-abc Foundation UK

Verified by JustGiving

RCN 1190390
We Raise funds and awareness to find a cure for H-abc

Story

We are running (some 10 km and some 10 miles) to help raise money for H-abc Foundation UK. The charity has been set up to help raise money for gene therapy for children with h-abc Leukodystrophy. The disease robs children of their abilities and eventually cuts their lives short. There is progress with treatment for this disease and any money raised will go to help fund this treatment and save these children.  

Frankie is 4 years old and has this disease, he will slowly lose the skills he has fought so hard to achieve. We are raising money to help cure Frankie!

Thank you for you support xx

Louisa, Tracey, Amy, Skye, Tara and Kelly 

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About the charity

H-abc Foundation UK

Verified by JustGiving

RCN 1190390
We are a charity set up by parents of children with Hypomyelination with Atrophy of Basal ganglia and Cerebellum (H-abc) to find a cure for this disease

Donation summary

Total
£100.00
+ £17.50 Gift Aid
Online
£100.00
Offline
£0.00

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