Running for Frankie
Fundraising for H-abc Foundation UK
Fundraising for H-abc Foundation UK
We are running (some 10 km and some 10 miles) to help raise money for H-abc Foundation UK. The charity has been set up to help raise money for gene therapy for children with h-abc Leukodystrophy. The disease robs children of their abilities and eventually cuts their lives short. There is progress with treatment for this disease and any money raised will go to help fund this treatment and save these children.
Frankie is 4 years old and has this disease, he will slowly lose the skills he has fought so hard to achieve. We are raising money to help cure Frankie!
Thank you for you support xx
Louisa, Tracey, Amy, Skye, Tara and Kelly
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