This is Abbie, she’s been Lexis bestie since they were babies (her mummy happens to be my bestie too!)

In 2018, aged just 7, Abbie was diagnosed with FSHD which is a rare form of Muscular Dystrophy. FSHD is a muscle wasting condition caused by a fault in her DNA. The condition currently means that she cannot smile, or move her facial muscles, she cannot blow a whistle, or drink through a straw. Her shoulders are also currently affected, and in the future the condition can spread to her elbows, hips and legs. Abbie is no longer allowed to partake in PE at school, or any high-impact activities a normal child her age should be able to do such as trampolining or skipping.

Abbie has a really positive attitude towards her diagnosis despite there currently being no cure. She said she wants to raise £4,500 which will fund 100 hours of research into the condition.

Abbie wants to cure this condition for other kids who get diagnosed in the future. We want to cure it for Abbie! So, this September I will be taking part in the Great North Run to support her fundraising campaign:

#AbbieCan