With Lewis approaching the age of 16 (Nov), I have decided to set myself my most demanding personal challenge ever.  Lewis fights
every day to stay alive and is in his 16^th year of doing so.

I have just promised him that I will attempt to run 1600 miles in a year (Sept 18-Sept 19), which is 100 miles for each year of his life. 
This will equate to an average of 133 miles EVERY month of the year, 33 miles EVERY week, and an average of 5 miles approx EVERY day for a whole year.  I honestly don’t if I am going to complete
the miles in a year, as there is a lot of luck involved as regards injury, purely due to the sheer volume of miles involved.  
But I am going to give it EVERYTHING I have to complete 1600 miles in 1 year.

As well as this I have just pledged to him that I will go sober for 1 whole year (3^rd Sept 2018 – 4^th Sept 2019).  Those
who know me well know that alcohol is my big achilles heel and something which affects my mental health greatly.  This
challenge alone is going to be extremely difficult for me to stick to.

This double challenge will be by far the hardest and most challenging thing I have done to date, but I’ve promised Lewis so there is no going back now. 

Even this doesn’t get anywhere near to what Lewis endures on a daily basis.

I know for a fact that both challenges will help me enormously with trying to cope with all the challenges and obstacles the next year is going to bring us, as he turns from 16yrs to 17yrs and from a child to an “adult”.  

I would be extremely grateful if anyone wishes to sponsor/donate to my double challenge to help me on my way!.  Any money raised
will go to the Life for Lewis Appeal. 

Many thanks.

Gary x

Lewis’ Father

I'm currently trying to raise funds for the following;

New Loft Space Conversion in my house to allow storage of my vast amount of medical supplies, continence products and numerous disability equipment.  This loft space conversion will allow the necessary space for a single bed to be situated in my downstairs bedroom so that my seizures can be monitored safely overnight by my parents and carers.  This will allow my mum and dad and/or carers to be close to me overnight to provide oxygen and VNS therapy, as well as looking after me and making sure I'm safe whilst having seizures, this could potentially be life saving for me, as I'm at risk of SUDEP (Sudden Unexpected Death in Epilepsy) http://sudep.org/.  It is currently not possible for my Mum, Dad, or Carers to be close to me overnight as my bedroom is small and due to the vast amount of medical  supplies, continence products and disability specific equipment, there just isn't enough room for a single bed in my bedroom.  Having this additional storage space in our loft will allow space for a single bed in my downstairs bedroom for my mum, dad or carers to safely provide vital overnight care and therapy during and after my seizures, and this will allow me to be able to be looked after at home.   "THIS COULD LITERALLY BE A MATTER OF LIFE OR DEATH FOR ME, SORRY TO BE SO BLUNT, BUT THAT'S THE REALITY OF MY DISABILITY AND CONDITION".   

House Adaptations/alterations - Any items and works required to help me safely access the downstairs of my house in my wheelchair as I'm getting bigger and so is my wheelchair!.  Also any necessary adaptations/alterations required in my house, to allow my Mum and Dad and carers to continue to look after me at home due to my complex condition and severe seizures. 

New Wheelchair Accessible Front Door with Low Threshold and suitable fixed ramp to allow safe access to and from my house as my Wheelchair has got bigger as I'm growing!.

SAT's monitoring machine and accessories  (SpectrO₂ 30 - WW1030 Handheld Pulse Oximeter with Alarms) so that my Mum and Dad and Carers can keep a close eye on my oxygen levels and pulse during and after seizures.   

New replacement floor mats for my sensory room as they have worn and will need replacing soon as it's becoming more and more difficult for my mum and dad, and carers to safely walk on them to provide me with all my care needs.   

I would be so very grateful if you were able to donate any amount to help me try and reach my targets and dreams, and to help improve my quality of life on a ongoing basis.   

Much Love,

Lewis x 

For more details about Lewis please go to his website;

www.lifeforlewis.co.uk

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