Story
Cystic fibrosis (CF) is something I remember learning about at school in detail, being a genetic condition which causes sticky mucus to build up in the lungs and digestive system. It affects more than 10,800 people in the UK. One in 25 of us carries the faulty gene that causes it, usually without knowing.
It was only a few years back when I truly learnt about the challenges that come with dealing with CF when I met my partner who’s sister Carly had the genetic condition.
As a newborn, Carly’s parents were told she was unlikely to live past 2 which I can’t even fathom how devastating that must of been. But Carly was a fighter!
She exceeded these expectations and although Carly’s life was short and by no means without challenge, she lived it to the fullest and with the amazing work that the CF Trust do, they are fighting CF, finding treatment and uniting people to stop cystic fibrosis.
Carly passed away at age 38, on 6th April 2021 and this has left a huge hole in the family but we have to keep going and fighting…
On 2nd Oct 2022, just 6 days after what would of been Carly’s 40th (and jointly my 30th) birthday, I’ll be proud to run the London Marathon in memory of Carly and would be grateful of any donations, no matter how small this is all going to an amazing cause.