Story
What?
On July 3rd, I will be taking on the Green Man Ultra in Bristol. 45 miles. Solo. Eeeeek!
Why?
My best friend in the whole world got diagnosed with MND a few years ago.
I'm going to be honest, I knew NOTHING about MND and couldn't even tell you what it was at the time. Since then, I've discovered that MND is a disease that effects the brain and nerves and devastatingly is terminal for most sufferers. The sheer hopelessness of the existing treatment and outcomes for those diagnosed is something I can't fathom. To think that in this day and age there can be something that has no real treatment or cure is unimaginable.
Ruth had not long been married and had her little baby girl when she was diagnosed. This has meant that the most amazing young woman, who spent nearly all her time outdoors (running, cycling, sailing, skiing) now needs a wheel chair to leave the house, support with daily tasks we take for granted and most importantly, can't pick up and phsyically look after her little girl.
The impact on her life, her husband's, her family's is devastating. And, the impact it's had on her physical ability to be a mum is heart breaking.
I'm forever in awe of Ruth's sheer determination and quite frankly pure stubbornness to keep going, to fight, to be a mother, a wife, a daughter and a friend.
We MUST raise awareness of this terrible disease and to raise money to contribute to new research and treatments to try and bring some hope.
Where will the money will go?
https://www.myname5doddie.co.uk/
The My Name’5 Doddie Foundation was established by Doddie Weir OBE (Scotland Rugby) in response to his frustration at the lack of options given to MND sufferers – no effective treatment, no access to meaningful clinical trials and no hope.
Money goes towards research as well as helping inviduals and families affected by MND.